Narcolepticjuicer

  • About: I am a wife to the most wonderful man on earth. About to celebrate 19 years of happy bliss. I have 3 wonderful kids that at about grown. 2 of my 3 kids also suffer from narcolepsy. I hope to set such an example that one day, they too will be medicine free. I love getting outdoors every chance I get. I was diagnosed with narcolepsy over 10 years ago. I have been medicated for the better part of 9 years with medication to keep me awake and medication to make me sleep. It was what became my "way of life". Until I watched Fat Sick & nearly dead, I had not considered using food to control my narcolepsy. I started out with 3 days of just juicing followed by a radical change in my eating habits. 11 days into this, I came off my daytime stimulants. I am now in the process of getting off the nighttime sleep aid as well. I am 43 and feel great! I have a site on facebook called Lifestyle change for the sake of narcolepsy where I post updates as well as encourage others to eat well. Terrie Beneveds tlbeneveds@aol.com
  • Why I've Joined Reboot with Joe: Why not? He inspired me to make a change for the better. If he had not talked about how juicing helps with auto immune disease, I would still be living just as I had been for many years.
  • Favorite Juice? kale/carrots/pear/pineapple
  • Food temptation? I don't want to say there has not been any, but I know from doing the Atkins diet for many years that I have to do my research and have enough of what I can have to help avoid temptations. I am only a month and 1/2 into this.
  • Birthday: Feb 08

Wall Posts

  • Narcolepticjuicer

    5 years ago

    From group: Lifestyle change for the sake of narcolepsy

    O.K. So, I was going to wait til after the next cholesterol screening to give an update on my eating clean but can't wait. That's not til after the 20th this month. Here is the run down so far if you've not really been keeping up..........................................................................................................................................................................or if you really want to know ;) .......................................................................................................................... ................................................................................................................................................................................................................................................................................................................................
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    I am a narcoleptic. I was diagnosed about 10 years ago. On 2 strong daytime stimulants for the better part of 9 years now to keep me awake. On a very strong nighttime medication to make my brain sleep. I went through my angry periods of life and had to quickly "get over it' and on with living. Only to find out a few years later that my daughter has narcolepsy. Through a roller coaster of events of 10th, 11th, and her senior year she would graduate with really good grades. The same year, we'd find out our youngest has narcolepsy too! Towards the end of 2013, my husband and I watched the food documentary Forks over Knives and decided that we really needed to change our eating habits. The next day we watched Fat, Sick & Nearly Dead and decided that day to buy our 1st juicer. I had been hearing news reports linking narcolepsy to an auto immune disorder ( I hate the word disease! ) I won't call it a new years resolution but I decided to challenge myself with eating clean for 6 months to see what or if it would help. What is this eating clean? Well, that's what I am learning about just about everyday. It's a process of changing my entire diet and learning new things. (for me anyway) I won't go into the foods I have not been eating or the new foods I am eating in this post because it's already long enough. What I am excited to share is the results of eating better. I felt so good on Jan 13th ( 11 days into eating clean ) that I decided to trial coming off the daytime stimulants. About 2 weeks later I decided to cut my nighttime medication in 1/2. Since February 19th, I have stopped taking it all together. I have been sleeping fine and no problems during the day. Now the only medication I was on is a hormone replacement that I was started on after a hysterectomy 2 1/2 years ago. Then I lost the bottle. 3 days later I finally got another script filled and decided since I've not had a hot flash or killed anyone as of yet, why not see what happens. I have been off of them since Feb 26th! My husband has strict orders to let me know if they are needed to be started back. Yes, he can tell way before I can. Not even 2 and 1/2 months into this and I am off all medication! Please continue to keep me in your prayers. I hope to stay off medication all together and hope that I can one day encourage other narcoleptic ( like my kids ) to change their diet so they can live better.

Discussions

  • Hello ~ I'm a narcoleptic juicer

    Started by Narcolepticjuicer, Last reply by EthanHunt on 2018-11-23 00:01:18

    Number of Replies: 6

    2014 started with a bang!

  • Narcolepsy

    Started by Narcolepticjuicer, Last reply by shoman on 2014-02-23 21:13:02

    Number of Replies: 3

    Anyone here with Narcolepsy?

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