Real Change

Getting back my life

Real Change

Posted by Solitaire Miles on 2 years ago

Hey Everyone,

Thank you for taking the time to read my post. I was inspired 6 years ago by the first movie, and I lost 115 lbs and put my Lupus into remission, and got off of the steroids that I had been taking for years. Like Joe I was also on methotrexate and I was in a vicious circle of medication, stress and bad eating.

I was doing great for about 2 years and then I got sick again... I had a small stroke from a blood clot in my heart. Lupus patients can get blood clots, it's not uncommon. It was such a surprise because I had lost 115 lbs and was a size 2 and working out every day, but when you have a disease that makes your blood thick and gluey, you just have to roll with the punches. Then, to make matters worse, I started having seizures every day because of the brain damage from the stroke. So the doctors put me back on the medication merry go round and it has been hell ever since.

Now, I have never stopped juicing, but I got real depressed and gained a bunch of weight back, which makes my Lupus worse. I didn't regain all of the weight, but at least half of it, and I really hate myself. I am still having seizures almost every day, and the doctors are struggling to find a treatment that works. Please, don't anybody suggest medical pot, because it only made my seizures WORSE and it is not a cure all for every one. Right now they want me to do a ketogenic diet, but I am afraid that I wouldn't be able to juice on that.

Anyhow, I am quite lonely, as I am alone in my house every day and not working. I don't go out more than once a week, because I am terrified of having a seiuzre in public. It's so difficult and painful to live like this while the doctors are trying to find a medication that will control the seizures. They are even talking about brain surgery... ugh. But I am still juicing! Every day... but what I think I need is a reboot, and I just need some moral support to get there. Any kind word would mean so much to me... thank you all. I was just watching Fat Sick and Nearly Dead 2 and they were talking about Community and how it's important, and since I am a shut in right now, I thought I would reach out to people online. Thank you for taking the time to read my post.

This topic contains 1 replies, has 1 voices, and was last updated by cynthia 2 years ago.

Replies To Getting back my life

  • cynthia

    2 years ago

    Dear Solitude -

    I'm so sorry to hear about your health issues - and how hard it is to be isolated in your home. I sure can't understand all that you have to deal with - however I can empathize with you as I have Lupus as well. I've been on Methotrexate and more for years and understand the constant roller coaster with drugs..... It's so encouraging to hear you were able to get off meds for 2 years! I'm curious as to how you started the attempt to get off the drugs. Was it something you started after you lost all the weight? Since lupus flares up and down, I find it so hard to know what is having an effect or not, or is it just the flare coming or going on it's own will....

    Regardless, I can only say that my heart goes out to you in this difficult time. You have accomplished so much. Don't forget that....

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